Burrow was honoured with the Helen Rollason Award at BBC Sports Personality of the Year 2022, which is given for “outstanding achievement in the face of adversity”.
Accepting the award, he paid tribute to his "MND hero" Doddie Weir and thanked his family for their support.
His former teammate Kevin Sinfield received a special BBC award for his fundraising, after he ran seven ultra marathons in seven days in November 2022 to raise money for MND research.
Rob Burrow would be looking down as the initial building work takes place for the MND treatment centre in his name, his family have said.
Burrow's death was announced yesterday but he had earlier indicated to family he wanted today's ground-breaking ceremony to go ahead.
PA Media"He was asked, and we were all there. There was no hesitation, he wants it to go ahead today," mum Irene told the BBC.
The sooner it could be built, the sooner people could be helped, she added.
"He'll be watching today and we've pulled ourselves together all of us, because that's what Rob would have wanted.
"It's just amazing to be here today for Rob. We're flying the flag and beating the drum and keep doing it and raising money, and we will get a cure. I'm so proud of him."
Dad Geoff said he hoped the future for people with MND would be "good" thanks to the research and fundraising.
Irene said it was the "second time we've had this bereavement".
"The first time, was the worst day of our lives when he was diagnosed.
"And yes, we're going through it now, but he's out of pain now and we're flying the flag. Onwards and upwards for everybody," she added.
Leeds Rhinos rugby league team announced on Sunday their former player Rob Burrow had died.
He had been diagnosed with MND in 2019, two years after retiring from the sport.
But who was the man behind the headlines?
PA MediaBurrow had a stellar 17-year rugby league career that included winning eight Super League Grand Finals, three World Club Challenges and two Challenge Cups.
He spent his entire club career with Leeds and made more than 400 appearances between 2001 and 2017, also being capped by his country.
In 2019, two years after retirement, he was diagnosed with MND.
His story was intimately documented, from the 24-hour care he went on to need, to using his pre-recorded voice box to tease his mum as she fed him.
He brought the lives of people living with MND into the spotlight.
PA MediaFundraising for the MND Association followed, with teammate and friend Kevin Sinfield taking on back-to-back ultra marathons to raise money.
Burrow, who was supported by wife Lindsey and the couple's three children, was made an MBE in the 2021 New Year Honours for his services to sport and for his work in the MND community.
The pair were awarded CBEs for their fundraising efforts in the 2024 New Year Honours.
Jamie Peacock, a former Leeds Rhinos teammate, told the Today programme about Rob Burrow's courage and legacy.
"He was the bravest and most courageous of us all," Peacock said.
"He has made a difference and he will never be forgotten, and that's the important thing we have to remember today."
Burrow collected eight Super League Grand Final wins during his playing career.
In 2011, he scored what is regarded as one of the greatest ever Grand Final tries to help Leeds Rhinos win against St Helens.
A ground-breaking ceremony for an MND centre in Leeds named after Rob Burrow has taken place this morning.
Cathy Killick/BBCThe Rob Burrow Centre for Motor Neurone Disease is at Seacroft Hospital and will support people who have the disease and their families.
Rob's dad, Geoff Burrow, was at the event alongside other members of the family, as well as Kevin Sinfield.
The ceremony saw people wiping tears from their eyes as the first spades went into the ground.
Cathy Killick/BBCPrime Minister Rishi Sunak, who recognised Burrow's MND campaigning with a ‘Points of Light’ award last year, said he was "honoured" to have spent some time with him.
"Rob was an inspiration to everyone who met him or who heard his incredible story," Sunak said on X.
Labour leader Sir Keir Starmer also paid tribute to Burrow and his "incredible legacy" on X.
"Rob leaves behind an incredible legacy in his work to raise awareness and advocate for those with Motor Neurone Disease," Starmer said.
PA MediaMy Name’5 Doddie Foundation, founded by Scottish rugby union player Doddie Weir in 2017, shared an emotional tribute message to Rob Burrow.
Weir was diagnosed with MND in 2016, and died in 2022.
Burrow had said Weir was his "MND hero".
"Doddie and Rob shared a unique bond, both as legendary rugby players and as warriors against this devastating disease," the charity said.
"His journey, shared so openly, has brought much-needed attention to MND, and his legacy will inspire future generations."
"The rugby community and the MND community have lost a giant, but the impact of Rob’s work and spirit will endure," it added.
A BBC News special is currently being streamed on iPlayer, where you can watch some of the tributes being paid to Rob Burrow, following the announcement of his death.
If you want to watch the live programme, just press the play button below.
Last year, more than 12,000 people took part in the inaugural Rob Burrow Leeds Marathon, including Kevin Sinfield and Rob Burrow.
In a memorable moment, Sinfield carried Burrow over the finish line after pushing his former teammate around the course in a specially adapted wheelchair.
The marathon raised funds for The Rob Burrow Centre for Motor Neurone Disease Appeal and the Leeds Hospitals Charity, as well as a host of other causes.
Work is due to start today on the multimillion-pound MND treatment centre named after Rob Burrow in his home city.
The state-of-the-art centre would be based at Seacroft Hospital in Leeds at an estimated cost of £6.8m.
PA MediaKevin Sinfield's many challenges have raised millions of pounds for it, with donations from thousands of others helping towards the goal.
Chief executive of Leeds Hospitals Charity Esther Wakeman said people had been paying their respects overnight by sending messages or donating to the appeal to build the new facility.
"Today the plan is to put a spade in the ground, to start building the centre. We still have a million pounds to raise, but we are confident that the community will continue to get behind this.
Leeds Hospitals Charity"This is something which will stand there for many years supporting patients and their families and that's what Rob wanted."
This morning we've been hearing about Rob Burrow - a family man, friend, decorated sportsman and motor neurone disease campaigner.
Many of the tributes we've published so far have been from his former rugby league teammates at both Leeds Rhinos and England.
Getty ImagesThe diagnosis for MND came just two years after he retired from playing, following a stellar 17-year career that included winning eight Super League Grand Finals, three World Club Challenges and two Challenge Cups.
Burrow's death was announced by the Rhinos, who called their former scrum-half and hooker "a true inspiration throughout his life whether that was on the rugby league field or during his battle with MND".
Getty Images
Getty ImagesBurrow spent his entire club career with Leeds and made more than 400 appearances between 2001 and 2017.
One of the most successful rugby league players in history, Burrow was made an MBE in the 2021 New Year Honours for his services to the sport and for his work in the MND community.
He played alongside Kevin Sinfield - a man who would go on to complete challenges with Burrow, raising millions of pounds for charity.
The pair were awarded CBEs for their fundraising efforts in the 2024 New Year Honours.
PA MediaPrince William, who had met Burrow and Kevin Sinfield a number of times during their work to raise awareness and money for research into MND, has paid tribute to "a legend".
PA MediaTweeting from the official Kensington Royal X account and signing his message with a W, the prince said Burrow had a huge heart, adding: "He taught us, ‘in a world full of adversity, we must dare to dream."
He added that his family sent love to Burrow's wife, Lindsey, and the couple's three children.
The announcement of Burrow's death has had a big impact on people this morning, with many national papers carrying the news on their front pages.
At Headingley Stadium, a steady stream of people have been arriving to pay their respects to Rob Burrow, whose death was announced yesterday.
One of those people is former teammate Jamie Jones-Buchanan.
PA Media"It's a sad day, it was a sad evening last night," he told BBC Radio Leeds.
"It's a time to reflect and that reflection has brought about the manifestation of the courage that Rob showed throughout his life.
"Rob was a shining light and the spirit of Leeds, to quote some of the tributes left at the statue of John Holmes.
"His legacy is one of courage, to do it for a mate with a mate, be brave, to stand up and fight for what you believe in and Rob did that both on and off the field and that will never leave this club, this town, this city and those who are inspired by Rob.
"Rob transcended sport and through the media he was able to get his message out of love, of altruism and benevolence."
A champion on and off the field, the determination, courage and humility of Rob Burrow guaranteed a legacy that stretches way beyond the sport he loved.
At 5ft 5in, Burrow was among the smallest men in rugby league, but he became one of its biggest names.
Father, family man, friend, competitor, campaigner. His death aged 41 comes nearly five years after he was diagnosed with motor neurone disease.
When Burrow learned of his illness, he told his wife Lindsey: "Thank God it's me and not the kids."
Read more from BBC Sport's report on the difference Burrow made to family, teammates and the MND community here.
The MND Association said Burrow was a "consistent and passionate advocate for people with MND" and "used every opportunity to raise awareness of the disease".
PA Media"It is testament to the strength of feeling people have for Rob that the support in his name has never wavered," their statement following his death added.
"The MND Association is incredibly grateful to Rob and his family for helping to raise awareness of MND, and funds for the Association, by sharing the details of their journey and by inspiring so many people both within the MND community and the wider public."
Last night and this morning, we've seen hundreds of people pay their respects to Rob Burrow at Headingley Stadium.
Flowers, shirts and scarves have been placed at the home of Leeds Rhinos, who Burrow played for before his MND diagnosis.
PA Media
PA Media
Sally Hurst/BBCKevin Sinfield has written about the love he had for friend and former teammate Rob Burrow, following his death.
Together, Sinfield and Burrow raised millions for charity to increase awareness and fund research into MND, a disease Burrow was diagnosed with in 2019.
Below is Sinfield's message following the announcement of his death:
PA Media"Today was the day that I hoped would never come.
"The world has lost a great man and a wonderful friend to so so many.
"You fought so bravely until the end and became a beacon of hope and inspiration, not only for the MND community but for all those who saw and heard your story.
PA Media"My love and thoughts go to your beautiful family, Lindsey, Macy, Maya, and Jackson, to your lovely parents Geoff and Irene, sisters Joanne and Claire and your wider family and friends.
"You will continue to inspire me every single day. I have lost a dear friend and I will never forget the special times we shared both on and off the pitch. I would always say that you were pound for pound the toughest player I ever played alongside, however since your diagnosis, you were the toughest and bravest man I have ever met.
Reuters"The last four-and-a-half years you showed the world what living and loving looked like and this was always done with the biggest smile on your face.
"I will miss you my little mate.
"All my love
"Kev x."
Hello and thank you for joining us.
We're waking up to the news this morning that former Leeds Rhinos star and MND campaigner Rob Burrow has died.
PA MediaLast night, Leeds Rhinos said it was with "deep sadness" they announced his death aged 41.
Burrow played rugby league for the Rhinos before his diagnosis with motor neurone disease in 2019.
Since then, he campaigned for more research into MND, with millions of pounds raised towards a new Rob Burrow Centre in Leeds, to care for those living with the disease.
His former teammate and friend Kevin Sinfield, who had spearheaded fundraising efforts by completing mammoth challenges, has led tributes.
"You will continue to inspire me every single day," he said.
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2024-06-03 11:13:04Z
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